About Us
- Home
- About Us
DEGETHA & FRIENDS
GERMAN SOCIETY FOR THALASSEMIA AND ALL RARE DISEASES (RD)
Our association was founded in 2014. The founding members and all active members are made up of affected and non-affected people.
What is special about DEGETHA & FRIENDS is that
the association acts as an international point of contact for mental health in rare diseases.
at least 50% of the board is made up of those affected.
the active members of the association bring many different professional qualifications to their voluntary work.
one member of the association is a doctor (hematologist) who authentically supports DEGETHA & FRIENDS, as he himself was born with a rare disease.
.
![](https://www.degetha.org/wp-content/uploads/2023/11/couple-of-two-old-and-mature-people-at-home-using-phone-together-in-sofa-senior-use-smartphone.jpg)
![](https://www.degetha.org/wp-content/uploads/2023/11/caregiver-or-healthcare-worker-with-senior-woman-patient-measuring-blood-glucose-indoors-.jpg)
We provide support, advice, and training for ALL rare diseases.
OUR TEAM
![](https://www.degetha.org/wp-content/uploads/2023/11/miso.jpg)
Dr. Mohammed „Miso“ El Missiry
Thalassemia Consultant
![](https://www.degetha.org/wp-content/uploads/2023/11/nico.jpg)
Nicola De Nittis
Member of the board
![](https://www.degetha.org/wp-content/uploads/2023/11/Stella-Pelteki.jpg)
Stella Pelteki
Member of the board
![](https://www.degetha.org/wp-content/uploads/2023/11/yvonne.jpg)
Ivonne Pachaly
Advisory Board
![](https://www.degetha.org/wp-content/uploads/2023/11/Paolo.jpg)
Gianni Manfredonia
Advisory Board
Patient Advocate
![](https://www.degetha.org/wp-content/uploads/2023/11/josephine.jpg)
Josephine Bila
Patient Advocate
Why does it “Anonymous” ?